12 Goals for Quality Care of Deaf and Hard of Hearing Children, as outlined by the JCIH

The Joint Committee of Infant Hearing (JCIH) recently published a supplement to the JCIH 2007 Position Statement: Principles and Guidelines for Early Intervention After Confirmation That a Child Is Deaf or Hard of Hearing.

Abbreviations:

ASL = American Sign Language

CDC = Centers for Disease Control and Prevention

D/HH = deaf and hard of hearing

EHDI = early hearing detection and intervention

EI = early intervention

IDEA = Individuals with Disabilities Education Improvement Act

IFSP = individualized family service plan

JCIH = Joint Committee on Infant Hearing

The article outlines 12 best practices or goals “to facilitate the development of systems that are capable of continuously evaluating and improving the quality of care for infants/children who are D/HH and their families…[and] to promote quality assurance of EI programs from children from birth to age 3 years and their families.”

Goal 1: All children who are D/HH and their families have access to timely and coordinated entry into EI programs supported by a data management system capable of tracking families and children from confirmation of hearing loss to enrollment into EI services

Goal 2: All children who are D/HH and their families experience timely access to services coordinators who have specialized knowledge and skills related to working with individuals who are D/HH

Goal 3: All children who are D/HH from birth to 3 years of age and their families have EI providers who have the professional qualifications and core knowledge and skills to optimize the child’s development and child/family well-being

Goal 3a: Intervention services to teach ASL will be provided by professionals who have native or fluent skills and are trained to teach parents/families and young children

Goal 3b: Intervention services to develop listening and spoken language will be provided by professionals who have specialized skills and knowledge

Goal 4: All children who are D/HH with additional disabilities and their families have access to specialists who have the professional qualifications and specialized knowledge and skills to support and promote optimal developmental outcomes

Goal 5: All children who are D/HH and their families from culturally diverse backgrounds and/or from non-English-speaking homes have access to culturally competent services with provision of the same quality and quantity of information given to families from the majority culture

Goal 6: All children who are D/HH should have their progress monitored every 6 months from birth to 36 months of age, through a protocol that includes the use of standardized, norm-referenced developmental evaluations, for language (spoken and/or signed), the modality of communication (auditory, visual, and/or augmentative), social-emotional, cognitive, and fine and gross motor skills

Goal 7: All children who are identified with hearing loss of any degree, including those with unilateral or slight hearing loss, those with auditory neural hearing loss (Auditory Neuropathy), and those with progressive or fluctuating hearing loss, receive appropriate monitoring and immediate follow-up intervention services where appropriate

Goal 8: Families will be active participants in the development and implementation of EHDI systems at the state/territory and local levels

Goal 9: All families will have access to other families who have children who are D/HH and who are appropriately trained to provide culturally and linguistically sensitive support, mentorship, and guidance

Goal 10: Individuals who are D/HH will be active participants in the development and implementation of EHDI systems at the national, state/territory, and local levels; their participation will be an expected and integral component of the EHDI systems

Goal 11: All children who are D/HH and their families have access to support, mentorship, and guidance from individuals who are D/HH

Goal 12: As best practices are increasingly identified and implemented, all children who are D/HH and their families will be ensured of fidelity in the implementation of the intervention they receive

To read the entire article online, please visit:

http://pediatrics.aappublications.org/content/early/2013/03/18/peds.2013-0008.citation

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One thought on “12 Goals for Quality Care of Deaf and Hard of Hearing Children, as outlined by the JCIH

  1. Pingback: School-Based Issues in Auditory Rehabilitation | Helpful Tools for Aural Rehabilitation

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